Greater Rochester NY Area
Parkinson Support Groups

Eastside Parkinson Support Group
When: Second Wednesday of each month, 1-2:30PM
Where: United Methodist Church 169 E. Main St., Webster
Contact: chazimm@gmail.com or choefen5@gmail.com
We are a small group which allows everyone to have a chance to share and ask questions. Spouses are welcome and often join us. All are welcome.

PD Support Group
When: First Thursday of each month, 4-5:30PM
Where: Al Sigl Center, 1000 Elmwood Ave,
Rochester
Contact: Mary Berk, 585-281-9652
(Leave a message to receive a call back.)

Parkinson Support Group of the Finger Lakes
When: Last Wednesday of each month, 1PM
Where: Wood Library, 134 North Main St., Canandaigua
Contact: psgfl2002@gmail.com
Topical presentations, followed by separate discussion groups for People with Parkinson's (PWP) and Care Partners.

Rochester Regional Health PD Education & Support Group
When: Third Wednesday of each month, 1PM
Where: 2655 Ridgeway Avenue, Suite 140, Rochester
Contact: 585-368-6679 sarah.wolf2@rochesterregional.org
Hybrid format (in person and zoom), with topical presentations followed by open group discussion.
All are welcome.

Wellness 360 Caregivers Support Group
When: Last Tuesday of each month, 4-5PM
Where: Webster Rec Center, 1350 Chiyoda Drive, Webster
Contact: phillipsjeanne74@gmail.com or beth@wellness360fitness.com
This is a supportive and uplifting group devoted to caregivers for with varied diagnoses. If needed, there is supervised fun for your loved one while you meet in a nearby room with others who understand what you are going through.

Westside Support Group
When: Second Tuesday of each month, 1-2:30PM
Where: Chili Community Center, 3237 Chili Ave, Rochester
Contact: Mike Shafer 585-330-1606
All are welcome!

Women with PD Support Group
When: Fourth Monday of each month, 12:30-2PM
Where: Al Sigl Center, 1000 Elmwood Ave,
Rochester
Contact: Yvonne Hylton, byvonnes@earthlink.net
Hybrid format (in person and Zoom). Women with PD gather to share experiences and support one another.
Please note that holidays might impact the schedule.

Young at Heart Support Group
When: First Monday of each month, 4-5:30PM
April-October ~in person~
November-March ~virtual only~
Where: Al Sigl Center, 1000 Elmwood Ave,
Rochester
Contact: Yvonne Hylton, byvonnes@earthlink.net
This group caters to people of all ages with a connection to PD. Please note that holidays might impact the schedule.

Young Onset Parkinson Network
Education, insights, blog, virtual monthly meetings, world class speakers for people diagnosed at a young age no matter their current age. yopnetwork.org

Greater Rochester Area
Programs & Services

Drive On
DriveOn, is a driving school located in Upstate New York that helps people of all ages and abilities to drive safely and confidently. Whether your goal is to obtain or retain a driver’s license, our driver specialists will train you in a full range of roadway environments
https://www.rochesterrehab.org/driveon

Wellness 360
Wellness 360 offers physical therapy, massage (including myofascial release, deep tissue, and medical massage), mindfulness classes, and group fitness classes.
https://www.wellness360fitness.com/

Rock Steady Boxing
Whole-body exercise that will help your balance and fitness in community. Provides non-contact, boxing-based fitness curriculum incorporating techniques to improve cognition, vocalization, stamina, strength, and agility. Supports social connection through individual and team dynamics.
https://www.rocksteadyboxing.org/

York Wellness Rehabilitation Institute @ Nazareth University
The York Wellness Rehabilitation Institute at Nazareth University offers pro bono services to individuals with PD who are underserved because of financial, insurance or geographic reasons. Nazareth students, supervised by licensed professionals, provide speech, occupational, physical and music therapy to clients with PD as part of its clinical education programs.

Mental Health Care

The providers listed below serve clients with chronic illness or medical issues causing emotional difficulties.

Sigrid Adler, LCSW (Rochester) 585.747.6603

Molly Cypher, LMHC (Pittsford) 585.233.8572

Anne Lenox, LMHC (Brighton) 585.431.1327

UR Older Adult Services (Brighton) 585.273.5050

Navigating mental health treatment options can be overwhelming – a clinical psychologist explains why it’s worth the effort

Published: July 8, 2024

Read the article

A Growing List of Resources

The resources below have been curated by board members and others within the Rochester Parkinson Network. If you know of a PD-savvy service or informational resource that is not listed, please share it with us.

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You can live well with Parkinson's.
Get started now.

First published in 2010, the Every Victory Counts® manual broke new ground as the only resource of its kind, devoted solely to the principle of proactive self-care and a holistic approach to managing Parkinson’s. In subsequent editions, it has gained international recognition as a superb and comprehensive resource for changing the way people live with Parkinson’s. Now in its sixth edition, the manual is the cornerstone of our new Every Victory Counts suite of resources, a robust collection of printed and digital manuals (including a new Every Victory Counts Manual for Care Partners) that embrace the Davis Phinney Foundation’s philosophy of taking action to improve your quality of life with Parkinson’s.

Learn More

Parkinson’s Disease Storybook

THE PD MOVERS – WE KEEP MOVING storybook is a compilation of narratives of African American and Black individuals and caregivers who are living and thriving with Parkinson’s disease. The goal of the storybook is to inspire and connect individuals in the community by sharing the experiences of these remarkable individuals. We also hope these stories will educate others by removing the mysteries and misconceptions of Parkinson’s disease and provide useful resources regarding diagnosis and treatment to allow others to thrive with Parkinson’s disease.

Learn more about APDA

Click on any of these logos to visit that site.

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Focus on Exercise

Check for locations and times most convenient for you.

Rock Steady Boxing

Whole-body exercise that will help your balance and fitness in community. Provides non-contact, boxing-based fitness curriculum incorporating techniques to improve cognition, vocalization, stamina, strength, and agility. Supports social connection through individual and team dynamics.

InMotion

InMotion leads the way in offering community-based wellness for people with Parkinson’s disease, providing healing arts, physical wellness, education, support and symptom-specific programs to help our clients feel better every day. We serve clients at our Beachwood, Ohio location and remotely via Zoom.

Chair Yoga for Parkinson's Disease

Chair yoga and movement therapies offer numerous benefits for individuals with Parkinson's disease, joint replacements, geriatric issues, and neurological disorders. It can improve flexibility and range of motion, help with balance issues, reduce stress and improve mental health. Gentle movement can aid in joint mobility and also build strength. Chair Yoga and movement therapies are adapted to the specific needs and limitations of the individuals, making them accessible and beneficial for a wide range of physical and neurological conditions.

More exercise programs
coming soon!